Story of a Schizophrenia Patient After Treatment
Treatment for schizophrenia didn't improve my self esteem very much. At the best addiction treatment center in Karachi, one patient is telling a story: I was completely unemployed and unable to attend school. Ordinary people were almost a different species, women completely unapproachable, and "I felt as high as a snake in a wagon rut." That's a quote, although I forget who from. There has been an improvement in Autism and ItsTreatment Categories in my quality of life each year on medication. My father has helped me financially more than I ever would have expected. As I recovered from the drug, I realized that much of my life experience was not my responsibility. I was ashamed of failures caused by a disease process known as schizophrenia. I have felt proud of my identity in the last year or so. I'm not successful by most people's standards, but I have much individuality. As my volunteer says at the end of telling the high school classes about his experience of schizoaffective disorder, "I got my life back." Since we only have one life on this planet, I couldn't ask for much more.
I graduated from university with a double major in biology and anthropology. In anthropology, I suspect recovery would be strictly defined by your contribution to your community and technically only the donation valued by your district. In our culture, that usually means you get paid by someone for what you do and pay taxes on what you earn, although volunteers are sometimes recognized for their contributions. Getting paid is a good indicator of recovery from schizophrenia, particularly when you become self supporting. I've noticed that you get treated very differently when you can contribute to your community. You get treated with respect. It's one of those hard biological facts of life, like growing old. Everybody grows old and has to contribute to the community to be a valued member. Being able to make a valued contribution to your community typically raises your self esteem, your sense of worth, and your self confidence to try new things.
It's a good
feeling. As a biologist, I measure recovery by annual earned income and the
quality of human relationships, particularly romantic relationships that lead
to successful progeny. Biology is mostly about leaving successful progeny,
successful in the sense that they flourish, and also leaving successful
progeny. But as a human being, I would measure recovery by how I felt about
myself, about being proud of my individuality. I manage my illness, and I've
adapted to what life offers. Time waits for no one, and the usual meaning of
recovery would involve turning back the hands of time. As a 51 year old, I can't
expect to relive my twenties, even if I want to.
People experiencing a first psychosis tend to
recover well on a low dose of medication. So they tend not to receive very much
attention from the medical system. Some so many other people are so much
"sicker." The trend now in mental health is to focus services on the
SMI clients, the "Seriously Mentally Ill." Unfortunately, the more
psychoses you experience, the more likely you will become one of that
population, but by then, the damage is done and can't be undone. Some
researchers believe most of the deterioration in functioning happens in the
first five years of illness. Many researchers believe the longer the DUP
(duration of untreated psychosis), the longer it takes someone to stabilize on
medication. More psychoses tend to result in a decreased response to drugs.
From what I have been reading, the greatest gain to be made in reducing the
initial DUP from 2 years, which is average, to less than six months. But
without good relapse prevention, those gains will be lost. A researcher from
North Carolina said the other day that the first five years of illness set the
stage for the rest of the individual's life, giving them the rest of their
lives to experience recovery, whatever that means for them.
"Quality of life" is another
philosophy driving support and rehabilitation. Schizophrenia can do quite a lot
of damage to functioning. For example, personal hygiene requires a lot of
effort because I don't enjoy showers anymore. I don't enjoy brushing my teeth as
much as other people do. These are daily activities that can't be avoided. I
can't read very much at all. Reading is one of the things I lost to
schizophrenia, so I will probably never be able to return to school or pursue a
new career. Many people with a history of schizophrenia carve out a niche that
doesn't involve functioning in an intensely competitive environment. It's a
different life that doesn't involve much money, earned or otherwise, one that
other people don't value very much, but the quality of life can still be
enjoyable. Quality of life is a subjective experience, and a vast body of
literature exists on the subject. Recovery, to me, is essentially a way of
measuring the quality of life.
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